Assuring access to transformative therapies for all rare disease communities.
Connecting the dots
Research and funding for orphan diseases is grossly unmet. ODC provides technological and educational resources, identifies funding opportunities, and fosters therapeutic development and innovative research.
We aim to make rare disease research accessible, collaborative, and sustainable.
Programs & Initiatives
Grant Opportunities
The ODC offers over 50 grant opportunities in 30+ disease areas annually to researchers across the globe, as well as within the Penn and CHOP community. Since 2011, our grant programs have funded $37.6 million in rare disease research.
JumpStart
The JumpStart program serves to establish and progress research agendas in emerging and neglected rare diseases. The JumpStart program partners with patient groups and families to address gaps by identifying key opinion leaders and introducing new researchers to a disease.
Million Dollar Bike Ride
The ODC is proud to partner with 30+ disease teams made up of patients, caregivers, foundations and family members who tirelessly raise much-needed funds for research grants.