Patients/families came from 11 different Brazilian states (Rio Grande do Sul, Santa Catarina, Paraná, São Paulo, Minas Gerais, Sergipe, Pernambuco, rio grande do Norte Maranhão, Pará and Roraima), with the partnership of several MPS associations, as Casa Hunter, Instituto AtlasBioSocial and many other advocacy groups. 

The event was organized by Instituto Genetica para Todos (Instituto Genética para Todos - IGPT) and Casa dos Raros (House of the Rares, a joint venture involving IGPT and Casa Hunter), and had the technical/scientific support of the Medical Genetics Service of Hospital de Clinicas de Porto Alegre.