Lesch-Nyhan Disease Virtual Family Meeting

Tuesday, July 6, 2021

4pm - 7pm EDT

The Orphan Disease Center hosted a virtual meeting for families affected by Lesch-Nyhan Disease on Tuesday, July 6, 2021 from 4pm - 7pm EDT. This meeting, open internationally to any Lesch-Nyhan patient representative, focused on an on-going natural history study of LND and the potential for gene therapy for LND. The recording of the video is available below.

Watch Recording

Please contact Samantha Charleston at scharle@upenn.edu with any questions.