Establishing a Krabbe Disease Newborn Screening Biobank and Natural History Database Platform

Awardee: Laura Adang

Institution: Children's Hospital of Philadelphia

Grant Amount: $150,000

Funding Period: August 1, 2023 - July 31, 2024

Health related quality of life for Egyptian children with Crigler-Najjar type1

Awardee: Mortada Hassan Fakhri El-Shabrawi

Institution: Cairo University

Grant Amount: $5,900.00

Funding Period: September 01, 2017 - August 31, 2018

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Publication: Health-related quality of life and cognitive function in children with Crigler–Najjar syndrome type 1