The ODC is offering 39 research opportunities focusing on 31 different rare diseases. This program provides a one-year grant to support research related to a rare disease represented in the 2023 Million Dollar Bike Ride. Number of awards and dollar amounts vary per disease based on fundraising totals by each disease team.

The MDBR 2023 Pilot Grants are open to the international community holding a faculty‐level appointment at an academic institution or a senior scientific position at a non-profit institution or foundation

Full Applications (by invitation only) are Due Monday, October 16, 2023 by 8PM EST.

To Apply:

Step 1 - Please review the 2023 MDBR Pilot Grant Program RFA Guidelines.

Step 2 - Download and complete the below forms:

Step 3 - Complete the Application Form on Submittable.

Research Areas for the 2023 MDBR Grant Program:

1. Adult Polyglucosan Body Disease (APBD)

2. Ataxia-Telangiectasia (A-T)

3. BPAN- A Neurodegeneration with Brain Iron Accumulation Disorder

4. CACNA1A

5. CADASIL

6. Castleman Disease

7. CDKL5 Deficiency Disorder

8. Choroideremia (CHM)

9. Complex Lymphatic Anomalies (CLA)

10. Congenital Hyperinsulinism (CHI)

11. Congenital Muscular Dystrophy (CMD)

12. Cohen Syndrome (COH)

13. Dup15q

14. Dyskeratosis Congenita & Telomere Biology Disorder

15. Fibrous Dysplasia/McCune Albright Syndrome

16. Glut1 Deficiency Sundrome

17. KCNT1

18. Lesch-Nyhan Syndrome (LNS)

19. Lymphangioleiomyomatosis (LAM)

20. Mucopolysaccharidoses (MPS)

21. MPS Gene Spotlight: Mucopolysaccharidosis (MPS I)

22. Neuroendocrine cell Hyperplasia of Infancy (NEHI)

23. Niemann-Pick Type C (NPC)

24. Pitt Hopkins Syndrome (PTHS)

25. RASopathies

26. Ring 14

27. SCN2A

28. SETBP1 Haploinsufficiency Disorder

29. STXBP1 Encephalopathy

30. SynGAP1

31. TBC1D24

32. ZC4H2